Day 8 fish Oil study

Great day!

One full week of NO storms!  And one full week of fish oil~~

Today Selah did wonderful with OT and ST.  She took water from a syringe and drank it, probably a whole 3ML.  I know that is not huge but it is.  She swallowed well and tolerated it.  During ST she got tired of the Popsicle and she pushed it away 3x!  We couldn't help but laugh about it.  Her personality is shining through!

Later I was wiping her face with a washcloth and she started sucking on my finger!  Honestly it scared me and I jumped:)

Monday is the day for the new attending doctors  to come in.  One came in that hadn't seen her since late September when Selah was turned down for the rehab hospital here.  She was shocked at the change in her, the doctor said Selah had made "significant progress"   she continued to say if Selah continues to make more "significant progress" she could start the process to come off the trach!!!!!!!   It is not an overnight thing but a process of at least a month, if all goes well.  They are very concerned about safety and do not want her to aspirate so we will see how things go.  I LOVE the term "significant progress"  

Just a little while ago Selah got her new trach.  For lack of a better term, it is a step down trach.  She is required to use her mouth and nose more to breath through, not just the throat opening.  If she tolerates this and so far she has quite well as her oxygen stats are at 100%, the opening in the tube will be blocked altogether forcing her to breath only through her mouth and nose. 

She will also have a covering over it called a "nose"  she has one on now.  The nose acts just like our filter in keeping the air  clean that she breaths in  Tomorrow her therapist will put on another nose that will enable her to make noise through it!!!!  So tomorrow we will hear some yelling.  If the new trach had gotten in earlier, the therapist would have done it today but we have that to look forward to for tomorrow!

For the record, Selah smells like the beach, quite fishy:)  It has permeated her clothes but to me it is the smell of progress:)  At least that is how I am choosing to look at it !  LOLOL! 

Thursday we are having a team meeting to look at where we are and where we are going....one thing I learned today is that if Selah is sent to Brooks in Jacksonville Fl, our family is too large to stay at the RMH there.  Not every Ronald McDonald House is as flexible as the Rochester NY RMH.    We don't split up our family and it wouldn't work anyhow.  So if you have any contacts in the Jacksonville Fl area please check them out for me. Please don't send me suggestions for me to check out, I wouldn't contact someone if I dont' have a link with them personally.   I am thinking maybe a church might have a "missions house" or something along those lines.  We wouldn't be interested in living with anyone, that would be a little too stressful!  But if you have contacts, tell them about our family and we will see what happens

Our hope is that Selah will work herself off the trach and be ready to go straight home from here.  If that did happen, we would drive home with her:)  She would have therapy at home, it is already set up and we would not need as much nursing care. 

As always we are just staying flexible, not sure what is going to happen.....

Thank you for your prayers for Selah, please continue to ask the Father to touch and heal her!!!!