Thursday, November 29, 2012

Day 25 Fish Oil Study

This was an eventful day!

First Selah....although she still has a slight fever, she did great in therapy.  she is handling her secretions good which is important.  Her therapist shared with me that she sees daily improvement with Selah.  Today she needed just minimal support  to sit on the side of the bed.  She can tell that Selah is doing most of the work.  Selah is also clearly showing when she does not like something.  She will push back, away from the therapist. 

When I walked in today Selah lifted her head and both shoulders off the bed and leaned in towards me!  I love it, that is usually reserved for Daddy:) 

We had a telephone conference with Brooks Rehab today.  We just had some concerns and wanted some answers about how things will go.  I clearly shared WHO Selah was BEFORE the accident so that they all understood she was NOT  a typical eight year old.  She has gone through alot in her life.  She has the language barrier, the institutional issues, and the developmental delays against her.  I must say I feel they put alot of effort into the conversation.  All their main staff were there, head of nursing, head of therapy, the doctor and several others.  The way Rehab works is you only stay as long as you meet goals.  It is totally dictated by Insurance....all the rehabs we have talked to have told us that.  Their average length of stay is 19 days....to me that is not even time to get to know a child much less help them!  Of course every case is different and we will be advocating for her the whole time.  I think I was able to clearly tell them who Selah was and what we want.  They were very responsive and positive.  Our doctors were in with us on the conversation and really encouraged us. 
The Rehab asked that ENT see Selah.  The speech pathologist who has been seeing Selah feels in her gut that there is an issue with her vocal cords.  They may have been damaged when she had her breathing tube put in or it could be a result of the accident, that that area of the brain that controls the vocal cords was damaged.   So ENT is going to scope her and get a good idea of what is going on.  Having an answer will let us know how to proceed in her speech therapy.

So the plan is still to go next Tuesday unless she still is having fevers then it will be put off until  December 10 or 11th.  We will see what she does.  We want her to be as healthy as possible for the trip and so she will be ready to participate fully in therapy.  Right now she is still a little off....

We did an interview with the ABC station here, it will be shown at 10 pm on Ch 16 on the local cable or at 11 pm on Ch 13 (ABC) on FRIDAY night  He is also going to contact the national ABC and send them info for us for Extreme Home Makeover:)   It was a positive interview, they have all been.  Sometimes talking about the accident and the aftermath is a little hard.  Sometimes it blows my mind at how far we've come...it just stirs up emotions in me.  We still have a long way to go!  Please keep praying for our girl!

Many things happening in the adoption world....

Yesterday a friend of mine son passed away.  You can read his story here http://bringinghenryhome.blogspot.com/2012/11/henry-is-finally-home.html
We are all heartbroken for this wonderful family who loved this little guy so very much.  His mom Carla has been an encouragement to me over the last few months and she is passionate about adoption.  She is the one who told me about the need the Basas family had....  so please say a prayer for this family.  We know Henry is with our Lord but the pain is unbearable to them!!!  If you'd like to give towards his funeral expenses, here is how you can give http://networkedblogs.com/FkBQQ

My sweet friend Vera is home with their new daughter!!!  Joey & Vera "lost" two children they were interested in adopting and then God brought them across this sweet girl's path....she just got home yesterday http://specialingredientlove.blogspot.com/

At the girls' institution there was a little girl that stayed with us as much as possible.  Her family to be got all their paperwork in yesterday....so happy for them!   So happy for her!!!!   She has waited for so long!   Thank God she has a mama and papa coming for her.... The last time I saw her she was sitting on her bed crying because we were leaving with the girls...now she has  family coming for her!!!!!!        http://reecesrainbow.org/48954/sponsorsayer





2 comments:

  1. A great day of encouragement, sounds like! May God continue to bring you encouragement. I wish every day were full of encouragement for you, Yvonne.

    I do pray that Home Makeover will do a makeover for you. Did you emphasize to them the problems of the house? My understanding is that they won't do it "just" for special needs in a too-small house. There has to also be justifiable reasons to tear down the original house, so it is important to emphasize things like faulty foundation, mold that cannot be eliminated, contractors who didn't do what they promised, or anything along those lines. Not just SMALL house but BAD house. :-)

    Love you! Praying for your family!

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  2. I continue to be happily astonished at Selah's progress!! So glad to read that the new rehab staff sounds as if they really want to help. Best of luck with the Home Makeover show. I'm more than sure that you will present your case in a manner that will elicit their support. Sending lots of love and prayers.

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